9/3/2025.

It's been a busy week. I'm really liking the weekly prompt version vs daily. Although tonight I'm exhausted so hopefully I won't be too sarcastic. I'm kind of in the mood to throw the computer vs being chained to it. Idk, saw a lot of behaviors at work today and it influenced me. Not that I want to go around flipping tables over and throwing random items while screaming - but it is an enormous energy release for the kids to where they are exhausted. It's intriguing. A different kind of exhaustion. I want to be that kind of exhausted vs working parent exhausted. I don't know if that makes sense. I don't think I'm in the right mind-frame to be writing tonight.

Not only was work a special kind of chaos, I'm being bombarded with a ridiculous amount of medical notices from automated systematic appointment booking and billings. Jake is undergoing a procedure at a hospital on Friday. Apparently I need to sign in, create accounts and know of these random "new" apps - over and over. Most of which appear to be fraudulent. I have a busy life. These types of things popping up over and over is annoying.

Anyway I'm a seasoned hospital parent. I can assure most people reading this - managing the kids' medical care, if I hadn't been good at keeping track of it - they wouldn't be alive right now. There is so much mismanagement, confusion, redundancy - it's astounding sometimes. Not just from potential malpractice from medical providers who are unfamiliar with developmental disability but being drowned through unnecessary confusing paperwork and procedures.

Which ironically brings me to the first prompt of the night:

Well... from my time as a stay at home parent - I pretty much lost my entire 'tribe' through so many different reasons. My world revolved around the intersection of complex medical/education. Friends and family had a significantly different lifestyle and parenting challenges - which ultimately was unrelatable. And then there is grief to consider. What brought happiness and joy to others on a typical life journey - did not bring me joy as I turned to ways to quell the inner pain, exhaustion and uncertainty. As an involuntary extremist, so many things seem boring to me now which is why I turned to creative projects and a new career path where I found a tribe.

***Hold on, I'm trying to write this and just received a blaring notice on my phone about baseball sized hail and a thunderstorm I didn't even know was happening. It's hitting north Wichita right now. I'm south. I can't seem to get any of the radars to work. ***

Anyone want pictures? It's looking awful out there.

(okay I may have gotten distracted by a giant storm forming over Wichita and yet not hitting our house.) Tennis size hail.

I'd upload photos but Jake pretty much stole my phone because I recorded videos.

Okay, cutting this short tonight - another storm is forming.