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1/26/25

Woke up feeling great this morning. And was pleasantly surprised by my blood pressure returning to normal. I'm currently on two medications.



The last month I significantly rested when possible (there were extreme environmental challenges - the ice/blizzards) and began game therapy. Started playing Animal Crossing as a productive way to mentally balance the stress/escape. Typically around 30 minutes a day.


Maybe this is oversharing but in my world, these kinds of details help others understand the challenges and progress required for actual improvement. So many face a harsh diagnosis and have no support system or any idea of how to navigate a new unexpected trauma to their life. I've been medical coordinating for years and I am a behavior therapist so yes - another existential crisis forced upon is unwelcome but I'm in a good position to handle it.


I've never been ashamed of my medical journey. Yet talking about it to others does bring trauma to the conversation and that can be uncomfortable. For me, for them. It requires a great deal of nuance and empathy. That factor right now is lost on SM.


Disability and medical crisis will effect us all. The best option is to be prepared, not scared.

I'm going to be honest, I was scared this time. Still am because the underlying cause has not been determined. I have another doctor's appointment on Monday afternoon. At this one, will go over the ultrasound results and I have plenty of questions ready to ask the doctor. I physically wrote them out so I don't forget. I have PTSD and while at a doctor's office my mind tends to blank out and go into survivor mode.


The side effects of the blood pressure meds have been minimal. No weight changes. Increased eczema on my hands. Some positive changes: I now get sleepy. I used to struggle to fall asleep. I'm hoping to increase the sleep time. I wake early. My average is 6.5 hours a day. Once I begin exercise and running again, maybe it'll help.


Today is the day I'm restarting a 5k run program. I'm going very slow and yeah, it feels weird to restart a simple baseline but it's needed. I had been very ill since October. Plagued with ear, upper and lower respiratory infections. I'm looking forward to getting this piece of my life back. I love running.



I prefer outdoor trail running so the hardest part is going to be converting to a treadmill. I currently don't have the flexibility in my work/life schedule to consistently run outside but also the weather has been extreme. Southern Kansas has mild winters. That's not the case this year. It usually looks like that photograph. 40/50 degrees. Sunny. If it ever snows, it lasts a day or two. Hard to describe how awful it has been this month.


I'm currently checking the weather.



Looks like we might be back on track. That's exciting. Of course on my day off, it's still cold. LOL.



 

One more thing - whoever made these for Jake and Julia, I love it!

Such a cute idea for supporting the kids in the SuperColts program.

Thank you!!









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